Connect
← Return to Median Arcuate Ligament Syndrome (MALS)
Discussion
Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: 13 hours ago | Replies (1156)Comment receiving replies
Hello @lmtuska,
I'm sorry to hear about your daughter's diagnosis, but so glad that you've come to the Connect Community.
MALS is such a rare disease, and because of the variety of symptoms, it can often be misdiagnosed. I'm confident that @kariulrich will join in with some answers and insight about her experience with MALS. I would like to tag @afternoonnapper1 too, who had discussed blockage of the celiac arteries, in the past.
In the meantime, I would also encourage you to read this article about research done at Mayo Clinic which discusses the effectiveness of endovascular repair involving branches of the celiac and superior mesenteric arteries: http://mayocl.in/1OS5tAf
@lmtuska, if you have any questions about coming to Mayo Clinic, please feel free to ask; we are here to help you. How has your daughter been coping with this condition, especially with regard to eating?
Replies to "Hello @lmtuska, I'm sorry to hear about your daughter's diagnosis, but so glad that you've come..."
When one starts to loose weight it happens rapidly, at least it did for me. I was an adult size 12 normally went down to a size 2 shorts falling off my hips. She sound like she is a survivor!!! I am impressed so happy she is going to prom! (Hope we get to see some pictures 🙂 !!! We are hear cheering for you! You all got this! Hang in there, NJ Tube and all! Hugs, Kari
Connect
Hello @kanaazpereira,
Great Info. She eats through an NJ Tube 90% of the time now. She just wants to be able to finish High School with normal hopes -- eating again and a date to the prom. She went from a size 10 to 0, losing 30 pounds in 9 months. She has been told she has SMA, and a possible clot in her SMV. As parents, we just want her safe. Her first diagnosis was Gastroparesis, and when the medicines did not help, she researched and requested the Doppler Ultrasound. That was the moment her doctor called us and told us she had MALS. She was normal and healthy prior to July 2015. Thank you again!