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← Return to Taking Orgovyx long term
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It must be frustrating having an ambiguous result like that. Lymph node involvement is less serious than remote metastases in bones or vital organs, but it's still concerning enough that you're right to want a more-definitive answer.
Have they offered you the option of having a couple of the suspect lymph nodes removed so that they can analyse them properly?
As far as personal experience goes, I've never been on ADT without an ARSI, so I can't compare, but my side-effects seem similar to those reported by people on just ADT. For a small minority of people, -lutamides can lead to heart conditions like prolonged QT interval, so if you have a history of serious heart issues, that might be encouraging them to steer you away.
Replies to "It must be frustrating having an ambiguous result like that. Lymph node involvement is less serious..."
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Thanks for the comment! The major reason I chose against surgery (RP + r/l iliac lymph nodes) was that the surgeon said he wasn't sure he could get both lymph nodes due to my having prior right inguinal hernia repair with mesh inserted. Being uncertain of the other node, I would almost surely be on the same treatment plan I have now. Darolutamide/Nubeqa has been mentioned as the most compatible with heart issues. I am taking Eliquis for aFib that was diagnosed last summer. A gentleman I met through an online session has recurrence in multiple lymph nodes and is taking only Darolutamide. His testosterone has rebounded to 1K (high normal?) but his PSA is undetectable. He is scanned every three months and activity in the lymph nodes is no longer showing. And he says he had fatigue the first months but no side effects thereafter and has been on the med since last August. I think that's called a Grand Slam!