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Reclast infusion

Osteoporosis & Bone Health | Last Active: Sep 3 4:11pm | Replies (50)

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Profile picture for dannyandebbie @dannyandebbie

I am told by my endocrinologist that it is not the Reclast! It is quite a coincidence that I received an infusion and the very next day I’m experiencing Terrible symptoms and pain in both shoulders, left foot, nausea and extreme fatigue. I have had these symptoms now for 11 months! Are things improving, yes. I have been going to physical therapy at the least, bi-weekly and really try to do my exercises every other day at the least. Last visit to the endocrinologist’s pharmacist, he expressed that the Reclast is active for around 18 months and that I am covered easily until I receive my next Reclast. I shared that until it can be proven and confirmed that the Reclast did not cause this….i will not be receiving any further infusions or other medications. What is the worse that can happen, fall and break a hip; they fix them daily now. ( I would not recommend going to a teaching facility for a hip replacement, a whole new conversation after six hip surgeries).
So, I would suggest seeking physical therapy, following an exercise program, Stay busy, ( idle mind is powerful). I know it is easier said than done! Try to recall, it’s not broken because I have not fallen to create this pain! The mind is powerful and alerts us when it senses something that is going wrong. We created this pain in a way( not 100%proven one way or the other); so we need to train our brain that this pain is not life threatening and hopefully over time the pain goes away, or we teach our brain that this pain is not life threatening and it becomes less and less. I hope you can kind of understand what I am trying to say. I’m slowly feeling better and I tell myself daily that I am in control, not the Reclast! Slowly improving! Keep positive

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Replies to "I am told by my endocrinologist that it is not the Reclast! It is quite a..."

@ dannyandebbie

I have rheumatoid arthritis and am in daily pain. My endocrinologist wants me to have Reclast for my osteoporosis. I’m terrified to take it. I can’t take any of the oral meds due to GERD. I’m thinking of just doing nothing as far as medication goes. Has anyone else not done medication for osteoporosis?

My learned rheumatologist told me there was NO way Tymlos could cause the types of pain I was experiencing . . . guess what . . . I stopped taking Tymlos and within days my pains had all subsided.

Btw, I don't think it's a good idea to think the worst that can happen is that you fall and break a hip - that's terrible (esp since you say you've had six surgeries already). I'm so fearful of having a fall and having a hip/femur fracture.

And, yes, we may start to have unusual pains from just getting older. Listen to your body and it'll tell you what's caused by getting older and what needs to be fixed. But, you are correct, even light exercise will help. I'm not a firm believer in PT, and I'm sure there are those of you who think chiropractic care is voodoo, but it worked for me. Cheers, all!

I have been on Reclast for 5 years, it has been great. Now I have been told that 5 years is the limit for Reclast. I have moved to Prolea but I don’t like it. Any ideas about what I can take?