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Is MAC a disease where there is remission but ultimately rarely a cure
MAC & Bronchiectasis | Last Active: May 25 8:45am | Replies (25)Comment receiving replies
Thanks @pacathy . I’ve never had MAC or aspergillosis either and was diagnosed with mild BE in 2023. My pulmonologist says it is very mild but I still have sputum production so I’m only guessing that some or most cilia are destroyed by infections left untreated and I know airway clearance is key to remaining healthy now.
Maybe data doesn’t yet exist to show how common MAC is in people who have mild BE , who also do airway clearance etc, but don’t have comorbidities or other lung issues except Bronchiectasis. I’m sure ID docs would have an opinion.
Of course if airway clearance wasn’t standard care until 2017 or so that makes a difference.
Thanks for your response! I’ll look at it.
Replies to "Thanks @pacathy . I’ve never had MAC or aspergillosis either and was diagnosed with mild BE..."
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Yes, I was diagnosed in 2019. I’m sure I had MAC and bronchiectasis from about 2013. Not one doctor after the 2019 diagnosis told me about airway clearance. So they watched and waited until 2024 when I was told I should be on the big 3 as MAC was spreading. I wonder if I had known about airway clearance much sooner I may have been in a better place now!