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DiscussionThe waiting is terrible: Husband has Stage 4 prostate cancer
Prostate Cancer | Last Active: 1 day ago | Replies (66)Comment receiving replies
Replies to "Good that he’s receiving treatment and sounds like his doctors have him on a plan to..."
I have stage 4 prostate cancer. When I was diagnosed my PSA was 326. Extremely high. I changed my eating pattern and my last PSA was 1.10 after 6 months. I just completed 21 days of radiation. I’m also on Lupron and Erleada (apilutimide) . I do have hot flashes like no tomorrow but I feel that is a minor thing to put up with considering.
If it helps, in my case the moodiness was worst during the first six months on ADT. After that, my body started rebalancing. By a year, I was mostly back to normal, mood-wise (I'll be passing my 4 year anniversary on ADT this fall). Even the hot flushes have become rarer.
And you're right that communication is key. Your husband or you need to ask the questions, and keep telling the doctors and nurses what he wants at every visit. Don't worry about repeating yourselves. Self-advocacy can be as important as any drug.