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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @kayleelayne,

Wow, what an uncomfortable symptom to have. I can only imagine how difficult it must be to just do the daily activities of life. Are you currently being seen by a neurologist? Have you ever seen a movement disorder specialist? These are neurologists who have special training in movement problems.

As you mentioned having migraines and vertigo, I'm wondering if you have ever been referred for vestibular therapy. It is a specific type of physical therapy and deals with vertigo problems.

I look forward to hearing from you again. Will you provide updates as to how you are doing?

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Replies to "Hello @kayleelayne, Wow, what an uncomfortable symptom to have. I can only imagine how difficult it..."

Hello!!
I've been seen by 5 different neurologist, none of them having any idea what is going on, why or how.

I've been trying to get in to see a movement disorder specialist for 2 years now but OHSU in Oregon is the only location and I can't seem to get in with them.

I'm sorry I forgot to add. My migraines and vertigo are mostly gone. Except for once a month with my cycle. With is normal my entire life.

I will definitely provide updates. Because as of right now we still have no idea why or how. Or if I can even be fixed. No one really knows what is really wrong with me.
Thank you!