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You have no idea what your words mean to me. Surgery is set for June 11. I can cancel if I choose. I had radiation/chemo 10 years ago for Stage 4 Base of tongue. I don’t drink or smoke so I couldn’t figure out why I got tongue cancer that they say wouldn’t be HPV like the Base of Tongue. All I know is cutting 1/3 of my tongue hurt way way less than the tumor. I had no idea radiation could be the cause of this cancer. So my question to you is do you regret the neck dissection? Should I go for it if immune therapy is not an option ? We seem to have walked similar roads.
The fluid now building under my chin looks like 2 ballsacks. 🤣 it’s funny /not funny.
Replies to "You have no idea what your words mean to me. Surgery is set for June 11...."
I'm sorry you have had to go through so much. Every case is different. I underwent a radical neck dissection nearly 19 years ago after chemo and radiation. I'm surprised at how much more people are aware of the issue and what is involved. Back then, doctors' experience with it was very limited. As it turned out for me, the neck dissection may have been unnecessary as the other procedures continued to have an effect afterward. It wasn't fun, and there are definitely consequences. Any neck procedure runs the risk of damaging baroreceptors that control your BP, so you may already be at risk for that down the road. Most of the swelling issues went away, and though I look different due to the hollow spot in my neck, I don't give it a thought. It's a battle scar and I won. Should you decide to go through it, definitely seek therapy to address all the issues you will face. Hopefully, you have a support system at home to help you through it. Good luck to you.
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Yeah @gypsylaura,
I am having issues with my reply on this site, so I put it in a pdf document to see if it works as I have been trying to reply for the past half hour and am trying this as a last resort.
Mayo Support reply to gypsylaura (Mayo-Support-reply-to-gypsylaura-1.pdf)