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When to accept permanent long covid?

Post-COVID Recovery & COVID-19 | Last Active: Jun 10 7:12pm | Replies (162)

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Profile picture for lauragwi @lauragwi

I have had long COVID 5 years now and somehow that mark has made me start looking at this more as a permanent condition and easing into being more accepting. It stinks being in my 30s and feeling like I am missing out on so much of life; some travels, social events, being able to work like a normal human, and feeling tired every damn day.

I am on the higher functioning end; I've maintained full time employment (though by taking lots of sick time, so really not technically all the way full time), I have traveled a few times at home and abroad since COVID (screw the consequences - I crash afterwards every time), get out for hikes (even though it worsens my fatigue, especially if I have to drive there and back myself - it restores my mind though and helps me sleep), etc. But I feel like I am burnt out. I've been treading water for five years and now I just want to let go and sink under the water. But don't know how to do that, as most of us don't know how to get by without working and someone to take care of you much of the time, which is what many of us need!

My semi- acceptance has me looking into more solutions - hiring friends to do on-demand cleaning/home care, possibly getting a roommate to not have to care for a household all by myself, cutting work hours, and hopefully going on 1 month medical leave which I have never done this whole time just to catch my breathe before I start treading life's waters again. And also, I pace myself with trying new long-COVID solutions - as we know, very few of them actually work so all the dr visits, specialists, supplements, etc just end up being a waste of time, energy and money.

I appreciate this support group as well; thank you for all your thoughts and ideas and encouragement!

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Replies to "I have had long COVID 5 years now and somehow that mark has made me start..."

I am very sorry that you’re suffering so much and are so young! I, too, suffer from Long Covid. I had Covid in December of 2022 and lost my taste and smell on day 2 of the virus and it’s now May 20o25 and it’s still not back. I have had 7 Stellate Ganglion Block injections and the 7th one took away my PTSD/Anxiety to almost 0. I do still, when I push myself to stay up late, have body tremors and sleepless nights, but I’ve learned I can no longer do that, so I don’t stay up late. I also have Hashimoto’s and stopped eating gluten, dairy and soy products and that has helped tremendously with body inflammation. I would definitely look into the Stellate Ganglion Block Injections. I had mine done at our big hospital Northwestern in their Pain Management Clinic. Good luck!

Somewhat depressing to have to consider but your possible life changes could make a major difference. I can't see any downsides to conserving your energy for those activities that best support you.
Looks like a long road before any substantive cures will be available.