← Return to MAC diagnosis with w/limited continued symptoms

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@sueinmn

@carriew I'm totally on board with your reluctance to treat your Mom! At 86, just her age would seem to be a huge barrier to successful treatment, then you add her other ailments...

Let me just say that my Mom had Bronchiectasis form a lifetime in the paper industry and was diagnosed with NTM (called MAI back in 2010) at age 83. She had a number of other conditions of aging, and the doctors didn't even suggest antibiotic therapy - they just continued her nebs and "daily cough exercise" and treated her exacerbations (every 3-4 months) with azithromycin for 10 days, and she would improve for a while. She died at the end of 2011 of conditions completely unrelated to her BE or MAC. The last year was difficult enough - I was treated for MAC and Pseudomonas myself in my 60's and I cannot imagine that she would have survived the regimen with any quality of life whatsoever.

Maybe you can discuss your Mom's situation with her primary doc or with a palliative care specialist, and get their recommendation. Remember, the ID doc's focus is cure infections, the pulmonologist's is to improve lung function - neither may be well-focused on the bigger picture of overall quality of life.

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Replies to "@carriew I'm totally on board with your reluctance to treat your Mom! At 86, just her..."

That is a great idea and makes total sense that they are "doing" their jobs. I have accompanied her on visits to the ID and pulmonologist, but not her primary care doctor lately. Out of the three, he appears to be the least open to me accompanying her on her visits, probably because I ask a lot of questions. I see you are a volunteer mentor; thank you for your response. How do I go about identifying a palliative care specialist?