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Leiomyosarcoma: What can I expect now?

Sarcoma | Last Active: 4 days ago | Replies (94)

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@dwagam0n

This is the first time I have reached out to anyone since being diagnosed. I have Leiomyosarcoma which was found in January 2023. At that time, they found a tumor on my left kidney and some spots on my lungs. I was setup for a lung biopsy locally, but it was cancelled because the doctors thought it was a fungal infection. The tumor on my left kidney was removed in March 2023 and I was setup to see a doctor at Mayo Clinic in April 2023. I began CT scans every six weeks and my Dec 2023 scan showed a shadow on my right hip. By March 2024, it was pronounced and a biopsy was completed at Mayo. They determined it was the same cancer as were the lung nodules that were being ignored. I was now stage 4. I started chemo in June 2024 (Doxorubicin). I had chemo every three weeks until Dec 2024. At that time I had reached the max I could take. CT scans since then have shown the cancer has doubled twice in my lungs. I am beginning to start another round of chemo. So far, I have tolerated the chemo well and have gained my strength back since stopping chemo in Dec. Original diagnosis was 18 to 24 months. I am now 28 months since my original diagnosis. Giving it all to God and praying I have more time with my children. Let me know if you have specific questions I can answer. Blessings! DEB

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Replies to "This is the first time I have reached out to anyone since being diagnosed. I have..."

Hi Deb....GOD bless you, and wishing you many more years together with loved ones...❤️
As you've reached the limit of Doxorubicin, are you on Trabectidin or another chemo? Please let me know. Thanks, HUGS and best wishes on your journey with this...🌞❤️

Chris

May want to discuss with your Oncologist the use of Immunotherapy. So folks have had some positive results with that treatment.