1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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mollylyn | @mollylyn | 3 days ago
In reply to @gmom14 "@mollylyn On June 17 , I will take my last Evenity shot. The first sets of..." + (show)
@gmom14

@mollylyn
On June 17 , I will take my last Evenity shot. The first sets of Evenity were excruciating for me. Apparently, others had bad experiences, because they changed the location from the Dr office to the infusion center where trained nurses give the shots...amazing difference! My doctor is recommending a Reclast infusion, after I finish my shots.
I have no idea if I have had any improvement. I meet with my doctor in June...so I will let you know how/if I have improved.

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Thank you for sharing your experience. My body feels like a train hit me. I'm fearful to continue. Sounds like you had bad effects in the beginning, how did you handle them? It sounds like you switched to an infusion center for the shots which helped? What did they do differently? Are you getting the shots in your arms or stomach? It's wonderful to hear you're doing well and no doubt your bone has grown after 1 year of shots.
God Bless.

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tkdesign | @tkdesign | 2 days ago

I tried it once. Could not fall asleep for over a month...I don't know what it does to your body to cause insomnia..must be some calcium mediated process.

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annie1 | @annie1 | 1 day ago
In reply to @joelaurie1 "It worked miracles on my osteoporosis! I had low bone density until i took envenity! Just..." + (show)
@joelaurie1

It worked miracles on my osteoporosis! I had low bone density until i took envenity!
Just had MAJOR Spine Fusion, because i took evenity for 12 months and my bones responded....

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Did the surgeon require your bone density to be a certain number before the fusion ?

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1 reply
joelaurie1 | @joelaurie1 | 1 day ago
In reply to @annie1 "Did the surgeon require your bone density to be a certain number before the fusion ?" + (show)
@annie1

Did the surgeon require your bone density to be a certain number before the fusion ?

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Yes, provider wanted my bone density to be much higher and we accomplished that with Evenity in a Year.!!!

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annie1 | @annie1 | 1 day ago

Good to hear. How often did you get the evenity shot ?

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1 reply
gravity3 | @gravity3 | 1 day ago
In reply to @annie1 "Good to hear. How often did you get the evenity shot ?" + (show)
@annie1

Good to hear. How often did you get the evenity shot ?

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Evenity is given 1x a month. Two injections. One in each arm. I,too, had great results.

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1 reply
rola | @rola | 1 day ago
In reply to @gravity3 "Evenity is given 1x a month. Two injections. One in each arm. I,too, had great results." + (show)
@gravity3

Evenity is given 1x a month. Two injections. One in each arm. I,too, had great results.

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@gravity3. I have my last shot coming up in July. May I ask your follow-up rx and are you doing bone markers after Evenity on the new rx? My rheumatologist has minimal understanding of the osteo world. Sadly, it's all I have where I live. She fought me on bone markers and now seems a tad open to them but she has no knowledge how to interpret them.

She's also on vacation most of the month of July when I do transition to a follow-up. She'd throw me on Prolia just bc! I'm not looking for that route.

Thanks

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2 replies
gravity3 | @gravity3 | 1 day ago
In reply to @rola "@gravity3. I have my last shot coming up in July. May I ask your follow-up rx..." + (show)
@rola

@gravity3. I have my last shot coming up in July. May I ask your follow-up rx and are you doing bone markers after Evenity on the new rx? My rheumatologist has minimal understanding of the osteo world. Sadly, it's all I have where I live. She fought me on bone markers and now seems a tad open to them but she has no knowledge how to interpret them.

She's also on vacation most of the month of July when I do transition to a follow-up. She'd throw me on Prolia just bc! I'm not looking for that route.

Thanks

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I am doing one year of Prolia then transitioning to something else. I haven't had any side effects but I don't want to push my luck. I have a consult with another endocrinologist at Duke who may be more creative. Unfortunately I've been on osteoporosis meds for awhile now... Alendronate,forteo, evenity, Prolia. I'd like to go back on evenity or try tymlos but not sure either is an option. I'll report back when I know more.

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1 reply
rola | @rola | 1 day ago
In reply to @gravity3 "I am doing one year of Prolia then transitioning to something else. I haven't had any..." + (show)
@gravity3

I am doing one year of Prolia then transitioning to something else. I haven't had any side effects but I don't want to push my luck. I have a consult with another endocrinologist at Duke who may be more creative. Unfortunately I've been on osteoporosis meds for awhile now... Alendronate,forteo, evenity, Prolia. I'd like to go back on evenity or try tymlos but not sure either is an option. I'll report back when I know more.

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TY for responding. I hope your visit to Duke is helpful, best wishes.

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joelaurie1 | @joelaurie1 | 1 day ago
In reply to @rola "@gravity3. I have my last shot coming up in July. May I ask your follow-up rx..." + (show)
@rola

@gravity3. I have my last shot coming up in July. May I ask your follow-up rx and are you doing bone markers after Evenity on the new rx? My rheumatologist has minimal understanding of the osteo world. Sadly, it's all I have where I live. She fought me on bone markers and now seems a tad open to them but she has no knowledge how to interpret them.

She's also on vacation most of the month of July when I do transition to a follow-up. She'd throw me on Prolia just bc! I'm not looking for that route.

Thanks

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Reclast infusion once a year is my follow up.!

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