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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: 2 minutes ago | Replies (112)
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@tmneuro

I agree! Over the last 13 years of getting these shots I have had to educate nurses who did not know how to: mix the sandostatin drug... and now on Lanreotide I make sure they know to give the shot slowly. I have learned to ask each month, even though some nurses do not appreciate me doing that. But it is my body and I want to get the full effect of it.

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Replies to "I agree! Over the last 13 years of getting these shots I have had to educate..."
Teresa, Volunteer Mentor | @hopeful33250 | 5 days ago

I appreciate your proactive approach, @tmneuo. We have a lot we can share with our medical team.

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mimighosh | @mimighosh | 5 days ago

I absolutely agree! The experienced nurses take 30 sec to 1 min to give the shot. It really needs to be slow.

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