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Doctor never told me

Kidney & Bladder | Last Active: 2 days ago | Replies (9)

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@gwladj76

I have wondered many of the same things everyone is mentioning....don't they care? I am 67, stage 4, diagnosed in 2023 with stage 3b. I was fortunate to have a kidney specialist visit me in the hospital, that's when I was given the news. I am on 6 month schedules for blood work to see how I'm doing. I've changed my diet, watching the sodium, potassium, phosphates and protein. I take my meds strictly on schedule, bp meds, statins. I try to get my exercise and rest. Personally, most of the time I feel great. There is the itching, fatigue some days.

I mentioned the ....don't they care? question to someone that is a RN. She said, it isn't that they don't care, there just isn't much they can do to stop the decline from stage 2 down to 3b. I was fortunate to push for a nutritionist and got some good advice. It seems if careful nutrition is important at 3b and 4, then it might be important in the earlier stages to prevent someone from going to 3b and 4. The directives don't always seem consistent.

As someone pointed out, with high blood pressure, they tell you to reduce sodium. However, if you have low blood pressure, it seems like the obvious choice would be to increase sodium...that's not what they tell you. This is the kind of inconsistency I'm talking about. Yet, the medical world doesn't take the time to explain the process and clear up the messaging.

I know the focus in gov't health departments right now is on vaccines and meds. They are supposed to be looking at chronic disease in the country. I hope kidney disease gets some 'real sound' science investigating the causes and finding solutions.

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Replies to "I have wondered many of the same things everyone is mentioning....don't they care? I am 67,..."

@gwladj76 In my posts for several years, it has been said, and I'll continue to say it. Our bodies are miracle machines. It is a fine balancing act to keep all these organs working at their optimal use for us! And so many little things can make a difference. From medications, to diet, to exercise, etc.

In my experience, it has been quite a challenge to balance everything. Not only am I on daily dialysis, I am a blood cancer patient undergoing treatment. What works for me for a diet might not be the best for someone else. What medication combo might be indicated for someone may not be the right one for me. It behooves us to take a proactive role in our own health, and consistently look for what will be the best benefit for us as an individual. Listen to what others experience and go through. Apply it to ourselves as we can. We are indeed all a team!

It is my own personal opinion, as a non-medical person, that our doctors are too busy. That many also simply do not "connect the dots" and relate different concerns to kidney issues. That for many it is easier to ignore/downplay the importance of kidney health rather than step up and be active in that part of our healthcare. That's where we become our own advocate. Research, listen, ask questions.
Ginger