Neuropathy

Amen!

arcuri24:
Totally agree.
We all have to best educate ourselves to our new reality. Seeking medical advice & proper care is what we all seek.
But if you suspect your Doc is not quite up to the task, don’t be timid about looking elsewhere.
I did just that when my PCP DIDN'T GIVE ME ANSWERS I WAS COMFORTABLE WITH. I sought out a Neurologist & endocrinologist that explored the issues I brought to them.
I now feel I’m on the right pathway.

I am glad that you have found new options. I hope it works well for you. I probably need to do the same. A PCP that is on top of his or her game seems to be rare.

I find it very credible that it took you so long to get a diagnosis. There was an article in an AARP magazine about a woman who was in agony and it took her 51 doctors before obtaining a diagnosis. I still do not have a diagnosis tother than having peripheral neuropathy. I feel like I am in limbo. It is very demoralizing. I am relying on faith and I do lean on friends for emotional support.

It is very frustrating because the neuropathy gets worse as you can’t treat it until you figure out the autoimmune disorder. By they it’s already moved into my heart and other organs.

I share your frustration. My PCP is doing the rule out approach. He already told me that I would not like any of the treatments. Getting to see a specialist is a Herculean task--not enough of them and so they are ultra-busy. Today is a bad day for me as far as my feet are concerned. I have also experienced rapid heart beating. Have you tried any holistic approaches? I am ready to give acupuncture a try while I am waiting for a diagnosis.

Acupuncture hurts too bad along with tens unit. I had additional nerve damage from mrsa bacterial spinal meningitis. I ended up with my autoimmune neuropathy after that

Since we both feel the same about MD's not taking time to actually ..listen...to the patient, and just pushing drugs/surgeries.............you might appreciate my going toe to toe with them a few times. One was for my friend in a hospital, i was the MPOA, so i spoke up. I had taken him in to ER, he couldn't move or speak more than one word, etc. they kept him 2 nights, then the following day 3 Dr's came in at the same time..........said, he is doing fine, we will release him today. I, in a very upset voice said............I don't know what You see, but what i see is a man, who can not move, he can not stand, he can not talk, and if i take him home, i will most likely be bringing him back in a day or two. I believe insurance companies do NOT like to see patients brought back for the same thing, they want the patient treated correctly the first time, plus i threw in a couple more sentences...............all 3 Dr's, decided he should stay for another day or two.............Unfortunately , they still couldn't figure out what to do for him, or what was wrong..........but the extra time, helped him to at least move a little, and talk in a sentence, instead just a word or two.
there were other times where i had them take him off drugs, that had nothing to do, with the reason he was in the hospital...............so to all of you out there, stand your grounds, if you are giving a med............ask what is if for, etc. Once they gave my friend Crestor,.............i said he doesn't have a heart problem, the nurse said, oh we give it ..............just in case................i said, take him off that, and they did.............i better stop now, because i'm starting to remember so many other times they messed him up and i had to step in,,,,,,,,,,,so please , just be aware of what they are giving you, and if you are able, speak up, and just say no, if it is necessary.

Hello,
Believe me, I realize exactly where you're coming from. In your case, it happened to a friend of yours. In my case, it happened to me and I work at the hospital where I was supposedly being treated and after a year and a half and many appointments plus 4 ER visits, they gave up on me and referred me to a second neurologist outside the hospital. Back in February of this year, my PCP (primary care physician) told me to stop all medications and all supplements and stick to just the blood pressure medication. I had been on everything short of opiods. Off course I was finally properly diagnosed and confirmed with peripheral neuropathy and both cervical and lumbar radiculopathy by the new neurologist. My entire body is in constant aftershocks.
I would like to suggest 2 good books if you like to read. They are major eye openers about the medical field worldwide:
• Compassionomics by Drs. Stephen Trzeciak and Anthony Mazzarelli
• In shock by Dr. Rana Awdish (her own story)

Take care and have a serene evening,
gus