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Primary Small Bowel NETS, Liver Mets
Neuroendocrine Tumors (NETs) | Last Active: Dec 23, 2025 | Replies (27)Comment receiving replies
Hello @parker27, and welcome to the NETs support group on Mayo Connect. You are asking a good question regarding how small NET tumors are found. As @fraaseo posted, NETs are often not seen in a traditional CT but need a specific type of PET scan. Here is a link to some information regarding the GA68 PET scan that was mentioned in the post,
--GA68 PET Scan
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/ and
--PET Scan vs. 68GA Dotatate Pet Scan...
https://connect.mayoclinic.org/discussion/fdg-pet-scan-vs-68ga-dotatate-pet-scan-for-neuroendocrine-cancer/
This type of scan can be very effective in finding even small NETs.
Have you had this type of scan @parker27?
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Thank you for the info, I appreciate it. I have not had any type of PET scan. I have only had a a few CT scans. As stated above, I have symptoms that mimic carcinoid syndrome, but none of my blood or urine tests are indicative of CS, so the doctors (primary and endo) are not referring any more scans.