← Return to Primary Small Bowel NETS, Liver Mets

Discussion

Primary Small Bowel NETS, Liver Mets

Neuroendocrine Tumors (NETs) | Last Active: May 24 7:52am | Replies (14)
Comment receiving replies
@hopeful33250

Hello @parker27, and welcome to the NETs support group on Mayo Connect. You are asking a good question regarding how small NET tumors are found. As @fraaseo posted, NETs are often not seen in a traditional CT but need a specific type of PET scan. Here is a link to some information regarding the GA68 PET scan that was mentioned in the post,
--GA68 PET Scan
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/ and
--PET Scan vs. 68GA Dotatate Pet Scan...
https://connect.mayoclinic.org/discussion/fdg-pet-scan-vs-68ga-dotatate-pet-scan-for-neuroendocrine-cancer/?pg=1#comment-911927
This type of scan can be very effective in finding even small NETs.

Have you had this type of scan @parker27?

Jump to this post

Replies to "Hello @parker27, and welcome to the NETs support group on Mayo Connect. You are asking a..."
parker27 | @parker27 | May 20 11:19am

Thank you for the info, I appreciate it. I have not had any type of PET scan. I have only had a a few CT scans. As stated above, I have symptoms that mimic carcinoid syndrome, but none of my blood or urine tests are indicative of CS, so the doctors (primary and endo) are not referring any more scans.

VIEW AND REPLY