Osteosarcoma on my left mid tibial bone, Hospital recommendations?

In 2005 I was diagnosed with osteosarcoma of the tibia. I was referred to Oregon Health & Science University in Portland. I had limb salvage surgery using a cadaver bone. I was doing ok for about 6 months but then got an infection and had an above knee amputation in 2006. I would assume that in 20 years there have been improvements. I have never really had regrets about the amputation and have done quite well. I am now 80 and now have to use crutches or a walker.
Part of the reason I had an infection was because of the very intense chemotherapy I was getting. Please feel free to ask me anything. Karen

I would try Doctor Herbert Swartz at the Vanderbilt medical clinic in Nashville, Tennessee.
I was diagnosed last year with fibroblasticsarcoma I had a 13 cm tumor attach to my femoral artery with blood vessels. At first I was at skyline hospital in Nashville.The trauma surgeon told me I'd bleed to death.If they removed it then they sent me to vanderbilt and he removed it been a long road back I don't know if he does that type of surgery but I would call and ask my prayers are with you

Where are you located? Most Medical Universities have Sarcoma-specific clinics. Your doctor should be able to refer you to a reputable institution with well-qualified sarcoma oncologists, radiaologists, and surgeons. Unless you have unlimited funds, use your local cancer center to get started with references and resources to receive discounted lodging, mileage reimbursment and free mental health/support groups. Most of all, stay positive.

@jamespnsolo, if you would like to seek a second opinion with Mayo Clinic sarcoma experts, you can submit a request here or ask your current doctor to submit a referral http://mayocl.in/1mtmR63

How are you doing?

Sarcoma is rare cancer. Suggest researching to find a hospital that is noted for treating Sarcoma. The hospital that is treating my sarcoma cancer is recognize as a center for treating the cancer. It is Barnes Jewish Hospital in St. Louis, Mo. Mayo may have the same noteworthy capability.

I’m not sure where you are located but Dr. David G. Mohler at Stanford Hospital in California is excellent. His bio on the Stanford website says
“Orthopaedic surgical oncologist, Sarcoma specialist, Musculoskeletal tumors surgeon”. I’m a PT who has worked with many of his limb salvage patients when I was at Stanford Hospital. He is excellent and has very good outcomes.

@jamespnsolo, I also wanted to mention a monthly support group for young adults with cancer hosted by Mayo Clinic on Zoom. You don't have to be a Mayo patient to take part. They meet the first Thursday of every month and the next meeting is on June 5. See details here:

- Young Adult Cancer Support Group Meeting: Y.A. Me Too https://connect.mayoclinic.org/event/aya-adolescents-and-young-adults-support-group-meeting-y-a-me-too-1-5d5a2cb5/

James, how are you doing? When will you have surgery?

How are you doing? I’m going in for my MRI tomorrow night to get clarification if it’s this exact thing. Mine is on my right leg, mid tibia. Did you find a doc and what type of surgery route did you take?

@tiffaniep

I'm having a bad day and desperately looking for something to hold on to.

Michael's cancer has spread and is partially blocking his carotid artery, causing him to faint.

Other than the chemotherapy they start today, there's nothing more they can do.

Can anyone respond about their own times when things felt hopeless?

Hello....
My hopeless moment came with the delivery of a sarcoma diagnosis, given by my Wife's surgeon, in a noisy, crowded, tv-blaring waiting room. In a brief few minutes, he delivered the information in somber, clinical tones. I was devastated and scared for my Wife and for me. It's hard to seperate emotion from cold logic in those searing moments. The key to handling these circumstances, is to not allow emotion to take over, and overwhelm you. With time to process, and support from loved ones, you get thru the overwhelming part, and start down the road to gradual acceptance and the "new normal".
I'm sorry the news you're getting right now is difficult and negative. Hopefully, with each passing day, you can see things differently or with a clearer perspective. I know that there are many stories of remarkable recovery after devastatingly difficult circumstances, and your Grandson could be one of them!! GOD BLESS you and your Family...❤️