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Repatha shots, twice a month and Farxiga daily! Any long term effects?
Heart & Blood Health | Last Active: Jun 22 1:39pm | Replies (8)Comment receiving replies
Hi @rhondaj I relate to how you say your symptoms creeped up on you. I recognized after 9 injections when I suddenly woke and sat up in the middle of the night thinking I had forgotten to breathe. At that point it came along with chest pain. Looking back, it crept up on me. Repatha did not help my LDL as much it should have, either. I distinctly remember sitting in my PCPs office at the exact time I was starting it, telling him “I feel really good”. I think that was January 2018. And then…..
I cannot tell you precisely what it did to me because other things going on at the same time, and I am finally in a place with doctors understanding just how to sort through it all. TBD I guess. I do relate to some of what you have experienced. I can tell you I tried communicating with the drug company’s nurse assigned to me and once I started having problems I could not get ahold of her.
I lost my identify in my medical records and am working through systemic health issues.
Where did you more people like you?
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Hi Janell,
Not surprising that the Repatha nurse disappeared when you started having problems, being that they "fudged' on the results to get the drug passed through the Fourier trials to begin with.
I decided to find people with similar problems regarding this drug. Something must be done to get our symptoms out to the public.
I "found instances of bad results from Repatha" online. You are the first actual person that I have spoken to. I found medical reports showing many of the same issues that I have been dealing with. I know they are from Repatha, because I have gotten so much better since getting off the drug. I am still dealing with long term issues, but the extreme edema along with the other symptoms improved as soon as the drug was out of my system. It was gradual, as it takes three months to get the drug completely out of your system per what I have been reading online. I felt a remarkable change within a month of being off the drug.
There was an article written on January 5, 2023 by Maggie L Shaw regarding a strong warning against Repatha. The article was" Experts Issue Caution for Evolocumab Following New Review of FOURIER Data: Amgen Disputes the Claims".
That is when I started digging for more information. I found a case report regarding Chronic Inflammatory Demyelinating Polyradiculoneuopathy Association with Low Choselsterol levels: "A Case Report in a Patient Taking PCSK9 Inhibitor". It was written by Diana Carolina Franco, Neelam Neoprene, Maria Riaz, San Mohammadzadch, and Issac Sachmechi.
This was written by medical professionals.
I found something months earlier on the Mayo Clinic site regarding Repatha as well. I had printed about five articles and showed them to my doctor months ago when I started suspecting that Repatha was the link to my problems. I was looking to find it again (since I gave the printouts to my doctor), when I came across this platform.
I finally decided that I needed to reach out to others as I know I am not the only one that has suffered from this drug.