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@payette78

My pulmonologist ghosted me after referring me to the infectious disease doc so I have only an Aerobika for airway clearance. I may not be able to tolerate the treatment and from what i understand with my m abscessus subspecies abscessus the best i can hope for is containment. I have a devoted husband who is supportive of whatever i decide but i figure i owe it to us both to at least try the treatment. If you are as blindsided as i am by this i am truly sorry. I am new too and don't have any wisdom gained from experience to offer. There are lots of terrific and helpful people online here. Try some keyword searches. There is a ton of collective wisdom and empathy. All the best to you.

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Replies to "My pulmonologist ghosted me after referring me to the infectious disease doc so I have only..."

Hi Payette, I too am torn about treatment or no, as I said. I am leaning to no treatment. My hearing keeps getting worse all by itself. The two hearing professionals I see both said consider not doing the treatment. I will not choose two make myself deaf and I will not choose to impair my vision reversible or not. I am studying the breathing techniques and trying to do airway clearance techniques as best as I can--huffing, controlled coughing, gentle pounding of the chest. I am doing interval stationary biking for my lungs, walking at least 3 miles or more a day. Learning how to hock for best results. I am willing to do that and more daily to live as long as I can with the best quality of life possible. Good luck in what ever choice you make. Thank you! keep me posted. Nancy