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Anyone have swelling with liver metastases?
Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (25)Comment receiving replies
Hello @bluebird1953
I'm sorry to hear that your husband is having such difficulty with carcinoid cancer. It is good to hear that the meds have slowed the tumor growth. Has surgery been scheduled for the pulmonary valve?
Here is a link to a Connect discussion where you can meet others with carcinoid liver cancer as well as carcinoid heart disease.
https://connect.mayoclinic.org/discussion/carcinoid-liver-cancercarcinoid-heart-disease-liver-damage/
As you post in this discussion group, you will find others with similar problems and you can read about how they are dealing with this combination of problems.
Will you continue to post and let me know how your husband is doing?
Replies to "Hello @bluebird1953 I'm sorry to hear that your husband is having such difficulty with carcinoid cancer...."
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Thank you so much for your comment and your link. He had one valve done. They want to try and control the link in the pulmonary valve with oasis to get rid of the swelling,as they said it’s not leaking as bad as the other one was. He’s quite upset that they didn’t do it when they were doing the other one. Mainly because the swelling is coming back in his thighs and stomach. I will check out the forum. Thanks again. I will keep you posted.