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2+ year roller coaster ride is over

Pancreatic Cancer | Last Active: 1 day ago | Replies (13)

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@sheridanb

Namodenoson is a drug that was recently approved for compassionate use for pancreatic cancer in the US. There are no trials in this country going on for it right now that I know of, but they have approved it for a "trial of one" in cases I think where other options are exhausted. Our oncologist and team needed to jump through some hoops with the company in Israel I think, then the FDA in order for Dan to receive it. Grateful to them for their efforts, however Dan's health failed right at the time the drug arrived so he never had the chance to try it. They didn't want to introduce a new drug with possible side effects while they were trying to figure out what was going on with his health without the drug. It turned out to be "something" around the spine/brain... first thought to be the shingles virus as he had had shingles about the time seizures began, but then thought it was his cancer that had spread. Anti virus and anti seizure medicines seemed to help for a week or two, but then a reversal into more seizures. Progression was quick when he requested only drugs just for pain and comfort. I agreed completely with his decision, but still was not ready to lose him.

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As my husband said to me couple of days ago“even when im gone I want you to keep your head up”. Please do so as well!
I know this is stupid but im kind of embarrassed, and ashamed that this happened to us. Weird