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Newly diagnosed with a mild case!

Polymyalgia Rheumatica (PMR) | Last Active: May 24 3:41pm | Replies (29)

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@kare1

I started prednisone 15 mgs on March 28, 2025 after experiencing pains in both my hips, left shoulder, neck, right elbow and the wrist in mid December of ‘24. I went to chiropractor, hip doctor, physical therapy and they really didn’t help after my family practicer immediately suspected PMR, but I could accept that. I was in denial. I got to see a rheumatologist who got me on prednisone and in 2 days I felt great. I’ve have osteoporosis in hips and now lower spine so rheumatologist wants to lower prednisone soon. And now I have to take Fosamax.! I stepped down to 12.5 mgs for 2 weeks and now just stepped down to 10 mgs. So far so good. BUT rheumatologist has also started me on methotrexate so we shall see what works. ( I’ve felt no ill effects of the methotrexate. ) Rheumatologist says it takes several months to see it working. My SED rate was initially 32 at family dr appt, then after a few months when I got to see rheumatologist it had jumped to 81. after prednisone it dropped to 34. We shall see what it is next week with the new prednisone level & methotrexate. Good grief!
After being healthy and going to the Y taking long walks, etc., this diagnosis blew me away.
Good luck on your journey!

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Replies to "I started prednisone 15 mgs on March 28, 2025 after experiencing pains in both my hips,..."

Blew me away too. I see a rheumatologist on June 10. I get more bloodwork next week and see where I’m at. Still really painful in the mornings. My shoulders most pain. Thank you for your input.