Just found this. I can’t remember if I posted anything about this or not, bad memory. My husband was diagnosed 4 years ago and has been on Lanreotide inj and Everolimas for the last 2 years. He has about 50 tumors in his liver and some scattered in other organs. only 2 of the tumors were growing faster and the meds slowed them. He had to have valve replacement this past January. We went on vacation and he started the same gross swelling in thighs, abdomen and even his hands. He went to ER when we got back and it took 160mg of IV lasix twice a day for 2 weeks to get rid of it. Scans showed that now it’s the pulmonary valve that’s leaking and he’s upset that they didn’t replace that one as well when they did the mitral valve. Anyone have a similar experience?