As I said, I’m pretty desperate. I thought maybe someone would see my post who had been through something similar and could maybe offer some suggestions. I have been so let down by our health care system. And I say this as a licensed RN. I understand a doctor not knowing what it is. What I don’t understand is how they can be so flippant about it. When they can’t figure it out, they are not offering suggestions on what else to do or who to see. It’s like they just dismiss me and don’t care if I ever find help.