← Return to Erosive oral lichen planus

Discussion
germany2 avatar

Erosive oral lichen planus

Autoimmune Diseases | Last Active: Sep 10 9:31am | Replies (238)

Comment receiving replies
Profile picture for Becky, Volunteer Mentor @becsbuddy

@jessicared Welcome to Mayo Clinic Connect ! Your posting is so positive even though OLP is such an awful disease to have. You’re a great addition to this discussion/support group?
One question, what is ACV?

Jump to this post


Replies to "@jessicared Welcome to Mayo Clinic Connect ! Your posting is so positive even though OLP is..."

ACV = Apple Cider VInegar too acidic for me, unless super diluted- i used to use it.
Becky, I have OLP. Esophageal LP, LP on skin and vulvr lichen sclerosis (all confirmed by Mayo biopsies. Wish i knew the connection to LP and LS. Have you heard anything?
I also am seeking a unicorn- a Neurosurgeon who has experience with Esop LP- literally cannot find a one in the Chgo or Mayo area, which shocks me. I know it's a rare disease, but I am certain there are other patients with Esop LP (not quite same as ELP which is erosive LP/esoph LP affects swallowing. (I do howeer sometimes get the mouth sores but was never dx'd as tgat, Had lots of mouth ulcers as child. Was treated with baking soda paste.
If you happen to know of any surgeons (anybody know?) I would be foreer grateful.

Best regards,
Chris

'