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Abiraterone alone for HT ADT therapy for PC
Prostate Cancer | Last Active: 55 minutes ago | Replies (26)Comment receiving replies
I was diagnosed with prostate cancer that had metastasized to a lymph node. Grade group 5 Gleason score was 9 to 10. I went through 38 rounds of radiation. They also put me on that damn Lupron and Zytiga with a steroid. I had great results with the Zytiga in one month my PSA results went from a 33 to a 0.4. I understand the use of the Lupron however, the side effects are bad. I now have arthritic symptoms in both hands. This is due to the Lupron usage. According to my hematologist oncologist, I’m in remission. I’ll take that. I get blood work done every 90 days. Check my PSA so far it’s non detect. I’ll take that.
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Here is what I have learned from it all. 2 years ago at the age of 86 they found a large tumor in my prostate but they sort of put me on a wait and hold and within a month it got out into lymph nodes including one in my chest. To those who are just learning do not ever let them do a wait and see if it is still contained in your prostate, get on it right away and go right to radiation if possible. Sometimes the tumor is located in an area where they cannot radiate it without causing bladder or bowel problems. They put me on Lupron and Zytiga and Prednisone with all the hell that goes with it. In 8 months my PSA was .02 and I quit everything. It takes a long time for the Lupron to get out of your system so the side affects continue for a while but within 4-5 months I could feel my testosterone increasing and started feeling like a man again. I never really got my muscles and weight back that I had lost. In March 2025 they did a Pet Scan and a new tumor had formed in the bottom of my prostate but it was still contained I opted for radiation but they could not do it because of the location up against my rectum. Its been ten weeks did another Pet Scan still contained and have gone on a Relugolix one pill a day regiment to reduce my testosterone once again. After 6 days only a couple of minor side affects. They should outlaw Lupron. Here is my take on the whole thing: you cannot kill cancer cells you just reduce the food it needs to survive, the testosterone. Even though your PSA may drop to less them zero the cancer is probably still hiding some where and is so small it cannot be detected and can come back at any time. We all know that all of these cancer drugs probably are way over priced and it is a huge money making machine for big pharma and they take advantage of the fact we would like to stay alive as long as we can. I know that zytiga and Lupron helped to give me diabetes and neuropathy and even affected my pancreas so that it does not work like it should. But I am still alive and I am glad so I can be with my wife as long as I can. Its a tough road. I know the American diet (processed foods and tons of sugar) does not help the body to stay healthy. Again its all about money and not helping people.