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Deciding on best procedure: Your thoughts?

Neuroendocrine Tumors (NETs) | Last Active: May 19 2:02pm | Replies (8)
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@splendrous

Thanks for sharing. I am interested in the size of your tumors when you had surgery. Did the surgeons who said it was inoperable give a reason? Was the surgeon able to remove all the tumors? Do you have any tumors at this time. Thanks again.

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Replies to "Thanks for sharing. I am interested in the size of your tumors when you had surgery...."
panorman3 | @panorman3 | May 18 5:06pm

i have not had sugery, it has just been found just printed options that peop;e have had it is in my mesentery and deemed inoperable

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panorman3 | @panorman3 | May 18 5:10pm

I am the only one with tumor i just printed options that i have reearched and found and it is on my mesentery and has just been found will meet my doctor on the June 8, so i can know what he should do. deemed inoperable

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jlsgt | @jlsgt | May 19 12:28pm

My tumor was about the size of a twinkie with arms constricting my small bowel in 3 places. It went like this:
Mass originally found by GI doc who referred me to general surgeon, but both thought it would be inoperable. That surgeon attempted an unsuccessful surgical biopsy of the mass. Took 3 large tissue samples and no cancer found. NETs can be very illusive! He then referred me to a Surgical Oncologist who presented my case to Tumor Board of a different 1200 bed hospital and nobody there would attempt it. This surgeon then referred me to the Rare Cancer Center where I finally had surgery. I was about 300lbs a year before surgery. Weighed 168 when I did have the surgery, almost dead. Surgical team took a conservative approach and removed most of the mass and several hot lymph node. I had ascites as well, so a lot of fluid also drained. Currently living good, feeling good, but I do still have the cancer and always will I suspect.

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