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Just Been Diagnosed with PMR

Polymyalgia Rheumatica (PMR) | Last Active: May 18 7:18am | Replies (9)

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I hope you feel better soon! For me, pain relief was fast but would come back overnight and start over. My dr advised split dosing and it was like magic, felt 85% all day and night. She had me taper quickly ( every 2 weeks, 15 to 12.5 to 10, then 1 mg reduction) until I hit a wall at 7 mg. Now it’s 1 mg monthly and down to 3 mg. After 9 months. With the monthly reduction I feel fantastic, can’t even tell I have a condition. Here’s what worked for me: 1) keep moving every day even if you’re sore. 2) do everything you can to minimize the side effects of prednisone (anti inflammatory diet, lose weight, no alcohol, daily exercise) 3) get vaccinated to avoid other illnesses- prednisone absolutely makes us have more and severe infections 4) lift weights to help minimize muscle and bone loss. Even light weights make a big difference. 5) don’t think of yourself as “sick”

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Replies to "I hope you feel better soon! For me, pain relief was fast but would come back..."

My situation is very similar to yours, its been almost a year. Keep living as fully as possible. I have been on 2mg for three weeks now and am starting to feel as good as I felt on 3mg. Same happened from 4 to 3. Takes a while for the body to adjust to less prednisone. No need to rush reducing the prednisone if things are going along okay, reducing 1mg every month. But I do get tired easily. I can dance for about two hours max. Also got to the gym and go rowing and work in the garden.Age 66male. Biggest remaining symptom is sore hands but that may just be arthritis. I will get that checked out after I have been off prednisone for a bit. Cheers.