@dlydailyhope
I agree. I know you care. That is why I wrote to you.
I’m sorry, I just wanted to point out how a senior citizen with a brain that is getting eaten away by disease can get frustrated, and overloaded. Almost all of us have to wait years for a diagnosis. Some will never get one until Postmortem (too late)!
I’m sorry about your son. That has to be hard on both of you.
It’s a wonderful testament to the dementia sufferers on here that we can still put our thoughts such as they are, on “paper”. I have traits of FTD, and am here writing and doing my best to stay “normal” they call it masking.
However, it’s exhausting. Pretending you are still the way you were takes work.
Couple that with fear of the future. We have an incurable, fatal disease, that causes stress to the entire family.
For myself, I am currently searching for an assisted living, memory care facility to take care of me when the time comes. I will have to sell everything I own to pay the extremely high costs. Where I live, it will be cost close to $10,000 each month!
I wrote this to help others going through similar issues.
Thank you for caring about us.
I wish you and your son a blessed week..
@SusanEllen66
I really do feel for you. You have a lot to deal with and I totally get masking. My son’s father (my ex), has ADHD (late diagnosis), Autism (undiagnosed), and early onset Alzheimer’s (he is in denial but I see the signs like I did with his mother…now I know what to look for and notice differences). He is 60. His mother (my mother in law) had early onset Alzheimer’s probably in her 40s and 50s but no one noticed except for me so I encouraged her on getting evaluated. I was more of her caregiver than her son. I was exhausted because I worked 60+ hours a week and had a toddler/young child at the time with no family at all. I am currently 55 and my son is 15. I am his sole provider and the future is scary for sure. I have so many health issues and getting surgery (3rd) on my cervical spine next week.
Do you have family that can help you navigate through all of this change? Do you have a support system around you so you do not feel alone?