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Neuroendocrine Tumors (NETs) | Last Active: 10 hours ago | Replies (6)

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@jlsgt

Centrist? Are you meaning Mesentery maybe?
So both you and your husband have Neuroendocrine cancer? What are the odds? You seem very knowledgeable about the treatments available. I can't really add to that. You also seem to be in good place as far as feeling good? Sometimes the best action is no action? Especially given how your doing currently.

My surgeon said my NETs was interoperable too. So did the next several surgeons actually. Finally got referred to one that helped me at the Rare Cancer Center, Metairie, LA. That surgery was 2 years ago. I'm on monthly Lanreotide shots right now. I can eat what I want, carbs included. 🙂 I'm also feeling pretty good. I want to have a symptom or two before I even think about another surgery though. Tough to get over. Best of luck to you.

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Replies to "Centrist? Are you meaning Mesentery maybe? So both you and your husband have Neuroendocrine cancer? What..."

Thanks for sharing. I am interested in the size of your tumors when you had surgery. Did the surgeons who said it was inoperable give a reason? Was the surgeon able to remove all the tumors? Do you have any tumors at this time. Thanks again.

I am the only one with tumor i just printed options that i have reearched and found and it is on my mesentery