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High grade glioma: waiting for remainder of molecular testing
Brain Tumor | Last Active: Jun 3 5:42pm | Replies (34)Comment receiving replies
It's a Grade 4 or Tier 1 glioblastoma. I think the chemo and radiation is for the doctors to follow standard of care before you can try something else. I heard of a treatment in which you were electrodes on your head for 18 hours a day. I think that involves Optune? From what I've read this treatment has fewer side effects and is possibly more effective. I'm interested in others' experience with this.
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My husband has been on the Optune treatment for 10 months. Although wearing the device has been a lifestyle change with pros and cons, so far so good. Last MRI showed no regrowth of a tumor. He has Glioblastoma grade 4, undergone surgery to remove tumor, radiation and is taking TMZ for a year. The Optune is reported to extend a persons survival but not a cure. Worth checking out.