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Any one with Neuroendocrine tumors getting the shot once a month?

Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (111)
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@hopeful33250

Hello @amygirl,

Often, size is not the most important factor to determine the need for the monthly injections, but carcinoid syndrome symptoms, such as having hot flashes, diarrhea, etc. Are you having a lot of these symptoms?

Also, are you currently being seen by a NET specialist, @amygirl? If not, it might be wise to have at least one consultation with one of these specialists. Mayo Clinic has NET specialists at all three of its locations. Here is a link with appointment information: http://mayocl.in/1mtmR63.

If for any reason you cannot be seen at a Mayo facility, here is a listing of other NET specialists listed by state: https://www.carcinoid.org/for-patients/treatment/find-a-doctor/

How are you feeling? Are you maintaining your weight or losing weight? Is your appetite OK? I look forward to hearing from you again.

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Replies to "Hello @amygirl, Often, size is not the most important factor to determine the need for the..."
amygirl | @amygirl | May 17 11:26am

I weigh 175 told I have fatty liver and visceral fat in abdomen. My appetite is fine but am eating very little trying to get in better shape to try and lose weight. I go to Carbone Cancer Center at UW Hospital in Madison,Wi. Near where I live. I do have diarrhea w certain foods and drinks. I was taking meal replacement drink but caused diarrhea must have too much sugar. Have since been drinking sugar free yogurt. Thanks for your interest.

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