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F T D Anyone know Frontal Temporal Dementia? Symptoms startiNow what?

Brain & Nervous System | Last Active: 4 hours ago | Replies (24)
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@dlydailyhope

@SusanEllen66
I totally understand your point. Your response would actually be for everyone responding in length of response and links, not just mine. My teen son has ADHD and has challenges with overload and executive function so I can empathize.

One thought is to read comments in short increments and take a break or don’t read the comments at all if they are too much. No one is forcing anyone on Mayo Connect to post, read or comment. Those responding to others with questions and comments are showing they care because they stop to take the time to respond rather than just move on.

Have a good day! 🙂

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Replies to "@SusanEllen66 I totally understand your point. Your response would actually be for everyone responding in length..."
SusanEllen66 | @SusanEllen66 | 3 days ago

@dlydailyhope
I agree. I know you care. That is why I wrote to you.

I’m sorry, I just wanted to point out how a senior citizen with a brain that is getting eaten away by disease can get frustrated, and overloaded. Almost all of us have to wait years for a diagnosis. Some will never get one until Postmortem (too late)!

I’m sorry about your son. That has to be hard on both of you.

It’s a wonderful testament to the dementia sufferers on here that we can still put our thoughts such as they are, on “paper”. I have traits of FTD, and am here writing and doing my best to stay “normal” they call it masking.
However, it’s exhausting. Pretending you are still the way you were takes work.
Couple that with fear of the future. We have an incurable, fatal disease, that causes stress to the entire family.
For myself, I am currently searching for an assisted living, memory care facility to take care of me when the time comes. I will have to sell everything I own to pay the extremely high costs. Where I live, it will be cost close to $10,000 each month!

I wrote this to help others going through similar issues.

Thank you for caring about us.
I wish you and your son a blessed week..

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