I am a male and was diagnosed with a pelvic floor dysfunction and Prudendal neuralgia. However a MRI indicated that there was nothing wrong with my Prudendal nerve. My main problem is pgad systems. If I am vertical (standing, walking) I experience pgad. If I am horizontal (laying down) I am not bothered. It is like in the vertical position there is a pressure on my pelvic floor. In the last year I have lost a lot of weight. The mussel mass in my upper legs and waist area is quite light. I am wondering if the loss of mussel mass has allowed nerves in the pelvic floor to be irritated and causing pgad? I have not received a good answer on this. Anybody else experience this problem?
You don’t say what exactly your symptoms are, that seem to be relieved when you are horizontal. I have not been diagnosed with PGAD, but my symptoms of low back pain and rectal pressure and urgency, also go away when I’m not upright. Like you, my doctors do not have answers for this.
I have been treated for pelvic floor issues, but that hasn’t helped.
I also believe it is being caused by something compressing the nerve when I stand. Have you started any treatments?
You don’t say what exactly your symptoms are, that seem to be relieved when you are horizontal. I have not been diagnosed with PGAD, but my symptoms of low back pain and rectal pressure and urgency, also go away when I’m not upright. Like you, my doctors do not have answers for this.
I have been treated for pelvic floor issues, but that hasn’t helped.
I also believe it is being caused by something compressing the nerve when I stand. Have you started any treatments?
Based on what I have experienced and others I believe the pgad symptons (feelings) are due to some issue related to the nerves (perhaps prudendal nerve) in the pelvis. When vertical there probably is some downward pressure on the pelvic floor which could irritate something. When horizontal the problem is much reduced. What type of physician would know about the function or problems of the nerves? It would be good to hear from a physician who could shed more light on this.
I have not been diagnosed, but it has been simply dismissed.
I had 30 or 31 chemotherapy treatments in 2014 for inflammatory metastatic breast cancer. My Oncologist had warned me that if I had any tingling or numbers in my feet to let her know as it was a sign of neuropathy and she would stop the chemo. I had no warning, after chemotherapy I went to grocery store with my husband, and jumped out of my shoes. I thought I was being attackefirearms. ants.
My organs began in 2019 after I was diagnosed with essential tremors.
My orgasms come about 3-4 weeks apart, but they can last 3 days. They become very painful.
This article is the first time I've learned that there was a diagnosis. I was searching because I'm 2 days into orgasms at this moment.
I would appreciate any advice. I live 30 miles east of Atlanta, Georgia.
I have not been diagnosed, but it has been simply dismissed.
I had 30 or 31 chemotherapy treatments in 2014 for inflammatory metastatic breast cancer. My Oncologist had warned me that if I had any tingling or numbers in my feet to let her know as it was a sign of neuropathy and she would stop the chemo. I had no warning, after chemotherapy I went to grocery store with my husband, and jumped out of my shoes. I thought I was being attackefirearms. ants.
My organs began in 2019 after I was diagnosed with essential tremors.
My orgasms come about 3-4 weeks apart, but they can last 3 days. They become very painful.
This article is the first time I've learned that there was a diagnosis. I was searching because I'm 2 days into orgasms at this moment.
I would appreciate any advice. I live 30 miles east of Atlanta, Georgia.
What is pgad? I have the urge to urinate anytime but my doctor said it was related to moving my bowels that makes me loose with my pelvic need to move my bowels
I have not been diagnosed but I believe I have had this for 10 years. I told doctors when it first began, but I was dismissed and told to go to counseling. I was treated very poorly. I was having many unwanted orgasms a day, often one after another for days on end. After a year or two I confided in a pastor about it, I was desperate for help as my mental health had become so bad because of this. The pastor told me that demons were having sex with me. Since the doctors had never heard of anyone feeling like something was having sex with them before, and the pastor had heard of it I believed the pastor, which added more shame and fear. I have learned to deal with it (there is a lot in the statement) and I have days that are not as bad as others. I've even gone a couple months without unwanted orgasms sometimes but the sensations of arousal happen most of the time.
Last week, I went to a gynecologist for other pelvic pain, it was my first pelvic exam in over 8 years, and she said I was having a lot of muscle spasms in my vagina. I did not share any of my sexual symptoms with her because of shame and I thought nothing could be done anyhow.
When I got home I researched pelvic dystonia (I was diagnosed with generalized dystonia 5 years ago and thought it might be that). I eventually found articles on PGAD for the first time ever. I had no idea this is a medical issue! I had no idea others women experience this!
My doctor referred me to pelvic floor PT for other pelvic pain but now I think I might try being honest with them about PGAD too. I really hope they've heard of it and don't dismiss me.
I have not been diagnosed but I believe I have had this for 10 years. I told doctors when it first began, but I was dismissed and told to go to counseling. I was treated very poorly. I was having many unwanted orgasms a day, often one after another for days on end. After a year or two I confided in a pastor about it, I was desperate for help as my mental health had become so bad because of this. The pastor told me that demons were having sex with me. Since the doctors had never heard of anyone feeling like something was having sex with them before, and the pastor had heard of it I believed the pastor, which added more shame and fear. I have learned to deal with it (there is a lot in the statement) and I have days that are not as bad as others. I've even gone a couple months without unwanted orgasms sometimes but the sensations of arousal happen most of the time.
Last week, I went to a gynecologist for other pelvic pain, it was my first pelvic exam in over 8 years, and she said I was having a lot of muscle spasms in my vagina. I did not share any of my sexual symptoms with her because of shame and I thought nothing could be done anyhow.
When I got home I researched pelvic dystonia (I was diagnosed with generalized dystonia 5 years ago and thought it might be that). I eventually found articles on PGAD for the first time ever. I had no idea this is a medical issue! I had no idea others women experience this!
My doctor referred me to pelvic floor PT for other pelvic pain but now I think I might try being honest with them about PGAD too. I really hope they've heard of it and don't dismiss me.
I also suffer from occasional orgasms just sitting around.
I used to have a lot of them,but they have subsided past year or so.
Like you, I never mentioned them to my doctors,due to my embarrassment.
I remember being at a casino in Atlantic City, playing a slot machine,when I felt one coming on.
I had to put my head down as not to show what was happening.
I have not been diagnosed, but it has been simply dismissed.
I had 30 or 31 chemotherapy treatments in 2014 for inflammatory metastatic breast cancer. My Oncologist had warned me that if I had any tingling or numbers in my feet to let her know as it was a sign of neuropathy and she would stop the chemo. I had no warning, after chemotherapy I went to grocery store with my husband, and jumped out of my shoes. I thought I was being attackefirearms. ants.
My organs began in 2019 after I was diagnosed with essential tremors.
My orgasms come about 3-4 weeks apart, but they can last 3 days. They become very painful.
This article is the first time I've learned that there was a diagnosis. I was searching because I'm 2 days into orgasms at this moment.
I would appreciate any advice. I live 30 miles east of Atlanta, Georgia.
I'm about to have my 5th chemo on Monday June 9th. I have neuropathy in my hands and feet, right hand is worse. I have ice bag for hands and I soak feet in Epsom salt with cool water. My oncologist never said she'd stop treatments if I had neuropathy. I'm scheduled for 6 treatments. I can't imagine have 30. 😳
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Have you consulted with a pelvic floor physical therapist?
I have been searching and trying different treatments for this disorder, but to no avail.
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1 ReactionBased on what I have experienced and others I believe the pgad symptons (feelings) are due to some issue related to the nerves (perhaps prudendal nerve) in the pelvis. When vertical there probably is some downward pressure on the pelvic floor which could irritate something. When horizontal the problem is much reduced. What type of physician would know about the function or problems of the nerves? It would be good to hear from a physician who could shed more light on this.
I have not been diagnosed, but it has been simply dismissed.
I had 30 or 31 chemotherapy treatments in 2014 for inflammatory metastatic breast cancer. My Oncologist had warned me that if I had any tingling or numbers in my feet to let her know as it was a sign of neuropathy and she would stop the chemo. I had no warning, after chemotherapy I went to grocery store with my husband, and jumped out of my shoes. I thought I was being attackefirearms. ants.
My organs began in 2019 after I was diagnosed with essential tremors.
My orgasms come about 3-4 weeks apart, but they can last 3 days. They become very painful.
This article is the first time I've learned that there was a diagnosis. I was searching because I'm 2 days into orgasms at this moment.
I would appreciate any advice. I live 30 miles east of Atlanta, Georgia.
Fire ants. I'm doing this on my phone.
It’s in the title of the post yeah? Persistent genital arousal disorder.
I have not been diagnosed but I believe I have had this for 10 years. I told doctors when it first began, but I was dismissed and told to go to counseling. I was treated very poorly. I was having many unwanted orgasms a day, often one after another for days on end. After a year or two I confided in a pastor about it, I was desperate for help as my mental health had become so bad because of this. The pastor told me that demons were having sex with me. Since the doctors had never heard of anyone feeling like something was having sex with them before, and the pastor had heard of it I believed the pastor, which added more shame and fear. I have learned to deal with it (there is a lot in the statement) and I have days that are not as bad as others. I've even gone a couple months without unwanted orgasms sometimes but the sensations of arousal happen most of the time.
Last week, I went to a gynecologist for other pelvic pain, it was my first pelvic exam in over 8 years, and she said I was having a lot of muscle spasms in my vagina. I did not share any of my sexual symptoms with her because of shame and I thought nothing could be done anyhow.
When I got home I researched pelvic dystonia (I was diagnosed with generalized dystonia 5 years ago and thought it might be that). I eventually found articles on PGAD for the first time ever. I had no idea this is a medical issue! I had no idea others women experience this!
My doctor referred me to pelvic floor PT for other pelvic pain but now I think I might try being honest with them about PGAD too. I really hope they've heard of it and don't dismiss me.
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Like -
Helpful -
Hug
1 ReactionI also suffer from occasional orgasms just sitting around.
I used to have a lot of them,but they have subsided past year or so.
Like you, I never mentioned them to my doctors,due to my embarrassment.
I remember being at a casino in Atlantic City, playing a slot machine,when I felt one coming on.
I had to put my head down as not to show what was happening.
-
Like -
Helpful -
Hug
1 ReactionI'm about to have my 5th chemo on Monday June 9th. I have neuropathy in my hands and feet, right hand is worse. I have ice bag for hands and I soak feet in Epsom salt with cool water. My oncologist never said she'd stop treatments if I had neuropathy. I'm scheduled for 6 treatments. I can't imagine have 30. 😳