← Return to Radiation induced Brachial-Plexus Peripheral Neuropathy Patients
DiscussionRadiation induced Brachial-Plexus Peripheral Neuropathy Patients
Breast Cancer | Last Active: May 19 11:12pm | Replies (43)Comment receiving replies
Replies to "Hello Robin and others who are suffering with this side effect from radiation. I am 62..."
Hello all—especially Patty. I I live in Mpls/St Paul area & have docs in MHealth system. I find that most doctors have never heard of RIBP. So frustrating that there seems to be no real help for this condition. Last I checked in I had been approved for medicinal cannabis. I tried for awhile but found not at all helpful. There are good days & bad days. I’ve also tried gabapentin & amytriptaline-not helpful. Also an array of herbal meds suggested by a pain management specialist —expensive & not helpful. PT has been somewhat helpful—“nerve glides” & “scapular punch”. I’m now in a new round of doctor appointments—getting in to see specialists takes so long. Have an appt with a Neurologist mid-June (on wait list which moved original appt from Aug 15 to Ie). He is supposed to be expert in peripheral neuropathy. Also possible appt with a physical med & rehab doc who works with cancer patients. My PC thinks I may have RA—my affected side wrist is very misshapen & painful (looks out of joint)-does anyone have that problem?
One thing that helps—my daughter crochets gauntlets for affected hand. My PT thinks it acts as a kinesthetic distraction so I’m not constantly aware of the strange numbness & pain. Also keeps my wrist warm which helps.
I’m back to using ibuprofen for pain & trying to walk 20 mins a day (though my implant knee doesn’t like it).
To all of you—keep trying! Keep smiling-there are several of us who know what you are feeling!
Geez, it sounds like you are really going through it with the distant side effects of radiation.
Please allow me to tag a few members from this discussion for you.
@lautwell @pamelahanson17 @krin
Maybe they will have some insights into how they deal with these same challenges.