Connecting with the doctors is akin to going down a rabbit hole. Very hard to climb out of there. Since I do not yet have a diagnosis I am being put through the paces of test after test--very anxiety-producing which is not good for folks with autoimmune issues. I have connected with other autoimmune orgs including the Arthritis Foundation--their folks are very nice and understanding. I consulted a dietician but am making my own adjustments. I also stick to a strict regimen of stretching and sometimes strength training. In today's NY Post there is a report of a new "inverse vaccine" which holds out hope of treating autoimmune illness in a kinder way than exists now. Hang in there and be good to yourself!