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Osteopenia/ Osteoporosis and Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: May 17 12:50pm | Replies (13)

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@pmrsuzie

Hello @rnm
I am 76 and was diagnosed with pmr in Dec of 2018 if I remember correctly. I started on 20 mg prednisone. I had already been having dexascans every two years because of having had a broken bone in my foot. I already knew I had osteopenia. I was already taking Vitamin D, 2000 IU daily, and am still taking that dose. I opted to not take calcium supplements because my dad had a few bouts with kidney stones so I try to get enough calcium with my diet. The first scan after being diagnosed with pmr was a little worse than the previous scan. The endocrinologist I was seeing suggested Reclast as a bone medicine. After reading about all the possible bone medicine choices, I decided on the Reclast mainly because it's a once a year infusion - no pills to worry about. I have had two doses. My scan did improve. Last year I had a nasty fall, no broken bones, and decided to wait til the 2026 scan before making a decision about another dose of the Reclast. I did not seem to have any side effects. All those bone meds can have side effects.
As far as my prednisone dose, I have never gone above the 20 mg. My nemesis has been tapering below 7 mg. Right now I am at 2.5 mg. I have had flares while tapering but have never felt as bad as when the pmr started.

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Replies to "Hello @rnm I am 76 and was diagnosed with pmr in Dec of 2018 if I..."

I am 62 years old I was diagnosed with PMR in August of 2023. Started on 20 mg of prednisone. Had a dexascan in October and discovered I have sever osteoporosis. Was told to try to taper off the prednisone more quickly and began taking the Evenity shot once a month. I took them for a year and my Dr told me my last scan showed some improvement. I also take calcium and Vit D. I am now taking the Prolia shot twice a year with no side effects. Currently down to 2 1/2 mg prednisone. I am having a hard time at this level but am gutting it out to try to get off of prednisone all together . I am taking Methotrexate but I don’t feel like it has helped me at all. I do yoga 3 times a week and I work 3 days a week. Try to keep as active as I can. I was desperate last week and tried the cold plunge but did not get any relief from it.