Going for Tulsa Pro

Posted by paulcalif @paulcalif, Dec 29, 2024

I've posted here a few times over the last year and have read most of the posts from others. I was diagnosed in January 2024 through an ultrasound biopsy (it should have been MRI guided), followed by a PSA test CT scan, MRI, and Decipher test. My cancer is not aggressive, but there are three growths in my prostate. My doctors recommended a full ablation, and I’ve decided to go with the Tulsa Procedure at UCLA with Dr. Steven Raman.

I’ve waited until now because I believe Medicare will begin covering the procedure on the 1st. of 2025. Earlier this year, I switched from a Medicare HMO plan (Blue Shield) to Original Medicare with a supplemental plan, where Medicare covers 80% and the supplemental plan pays the remaining 20%. It’s been incredibly difficult to determine whether Medicare will actually cover the procedure, as I’ve received conflicting information. However, I think they will.

I considered going back to an HMO with United Health Plans, which includes UCLA physicians as in-network, but no one could guarantee that they’d cover the procedure either.

Anyway, I thought I’d document this journey. It begins on January 5th, when I’ll check into an Airbnb hotel near the procedure location. This is two days before the procedure. I’ll have to fast those 2 days and completely empty my stomach (I’ll spare you the details). In the best-case scenario, I’ll wake up with a catheter and a “burned out” prostate. I’ll need to wear the catheter for at least two weeks. Hopefully, they'll get it all 🙂

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@bobbygene

I had TULSA in November and returned for follow up March 4. I had labs done at the VA two weeks ago and PSA was 0.88. OU checked my PSA on Mar. 4 and it was 0.7. Before the procedure it was around 10. Dr. Stratton was very pleased and told me it couldn't get any better. My only side effect is dry orgasm. Erection is about like it was before the procedure. Dr. wrote a prescription for Viagra. I go back in June for an MRI. I'm very happy with my decision to go with TULSA PRO.

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BobbieGene
I am hoping to use the TULSA treatment, if I qualify. And I am also a veteran with full VA benefits. I am not looking for the VA to fund the treatment. I could not find any information within the VA Libraries or even doctors who were familiar with TULSA or a POC .... so with the lack of transparency and red tape at the VA to discuss the issue of TULSA treatment. I am going to decide the "when and where" and my insurances will cover the cost. However I don't know if VA needs to have input... Could you provide me any type of POC or even a reference of the VA's opinion?
BGJCL

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As a Vietnam veteran my prostate cancer claim is covered under the VA because of Agent Orange exposure. But TULSA isn't covered. The Dr. at my VA clinic never heard of TULSA. I did my own research and asked them to refer me to OU which they did. I had to pay for the procedure out of pocked but the VA covers the Dr. visits and other treatment. I go back June 3rd for a follow up MRI. VAs involvement depends on your disability status. If you haven't already applied, you should file a claim for your cancer.

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