← Return to Pseudomanosis: what is your protocol/medications

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@irenea8

20 years wow. So did you switch to Cayston because the Colistin finally stopped working for you? I heard that Cayston is now covered by medicare but is that Part D or Part B? Was the colistin covered by part D or part B? I know that Toby is covered by Part B which is nice if you can tolerate it!

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Replies to "20 years wow. So did you switch to Cayston because the Colistin finally stopped working for..."

Irene,
Medicare is covering Cayston by part D. I had switched from Colistin to Cayston because I had gotten sick and ended up with fluid on my lungs (pleurisy) and had to have the fluid drained. I was hospitalized for 8 days and was very sick. Afterwards I started back on my schedule of taking Colistin which now made me short of breath after all those years of using it. My doctor didn’t know why. I assume my lungs were in bad shape afterwards and were still healing. So we tried the Tobi podhaler which also made me short of breath and was intolerable. Then my pulmo tried me on Tobi inhalation which I did not tolerate either. So finally with Cayston being approved by Medicare we tried that and I had no problem with it at all. So here I am hoping this lasts since I was only on it for 28 days. I’m off now and will start again I two weeks. I had no side effects and it helped with controlling pseudomonas…