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@perryleeoneal

Hi - PNet diagnosis in September of ‘20 …. (4) total tumors …. Three in pancreas (head 3cm, body 3mm, tail 3mm, lymph node 4cm) …. Whipple in January ‘21, removed head of pancreas, all lymph nodes at pancreas and did “normal” Whipple stuff …. Scans and blood work every 6 months, metastasized to liver and another lymph nodes 3 years later, (4) total tumors again …. (3) on liver all @ 3cm now, lymph node tumor is @ 4.5 cm …. Started me on the Lanreotide injections once a month @ 6 months ago but last set of scans in April showed it to be not effective in slowing down the growth of the tumors have another set of scans in August …. If injections are still not working as intended then will probably get more aggressive ie. (PRRT, ablation or resection) All my care is being taken care of at The MD Anderson Cancer Center in Houston …. Perry

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Replies to "Hi - PNet diagnosis in September of ‘20 …. (4) total tumors …. Three in pancreas..."

Hello @perryleeoneal and welcome to the NETs support group on Mayo Connect. I appreciate you sharing your journey with NETs. I am glad that you found this forum. It is a good place to share your experiences and to also learn from the experiences of others.

Here are some other discussion groups that you might find helpful,

--Diagnosed with Stage 4 Pnet metastasized to the liver
https://connect.mayoclinic.org/discussion/diagnosed-with-stage-4-pnet-metastasized-to-liver/
--Son, 48, just diagnosed with Pnet
https://connect.mayoclinic.org/discussion/son-48-just-diagnosed-with-pnet-pancreatic-cancer-8cm-tail-and-in-spl/
How are you feeling? Have you had much weight loss or loss of appetite? Has your blood sugar been affected by the surgeries to the pancreas?