Hi @rosemarya, yes I’m a patient at Mayo, AZ and will have my follow up appointments there. I live in Vegas so it’s not too far away.
My wife and I have been crying a bit. And it does seem to help but, I’m still it that bad place. To boot some cyst appeared in my kidneys through this process, I meet with urologist tomorrow to review.
my doc said I have real good prognosis with the things I’ve done so far to avoid further damage. Loosing weight, cutting out alcohol altogether and My labs etc coming back in range but, I’m still Stage 4 cirrhosis or “early cirrhosis” and I’m scared 🙁
are there folks here that have turned it around? Regressed it?
I’m driving myself worse by every thing I feel being a potential symptom.
You are so brave! Being a mentor and also a liver/kidney transplant recipient, I can’t seem to find that bravery right now. How long has it been for you?
I don’t have a firm next appt yet, I think all the tests are still ruling out any other potential underlying issues.
Hello,
Welcome to Mayo Connect. You are doing the right things. I also have stage 4 liver cirrhosis. I have been monitored at Mayo Jacksonville for five years now. I did all the testing for liver transplant (which was ok but the thought of it was scary) and eventually got on the list. I developed a liver tumor that grew to 2cm which gave me exceptional points on the transplant list. But.. the good news is I try to keep in good health just like you are doing and I am now off the list and three years cancer free. This is a life changing and prioritizing experience for sure. Every person’s journey is different but we are lucky to live in a time when treatments are available and lives can be extended. Stay as healthy as you can, eat well, and enjoy each day and each person is the advice I was given. I think it is good advice so I strive to follow it. Wishing you the best of luck and know that there are people here to talk to.