← Return to Confused and Anxious: Questions about fatty liver and cirrhosis

Discussion

Confused and Anxious: Questions about fatty liver and cirrhosis

Liver Diseases | Last Active: May 16 7:14am | Replies (33)
Comment receiving replies
@rosemarya

Hi, @jmadiedo, and wellcome to Connect. I am a liver/kidney transplant recipient and I completely understand how you are feeling. It is normal to be really scared and freaking out. I was 'there' too. In fact I cried, and my husband cried, and we made an agreement to cry together. It didn't bring any answers, but the crying seemed to be a tension relief for us, as we faced the uncertainty about my liver condition.
I notice that you were seen by a liver specialist at Mayo AZ, (I'm a patient at Mayo MN) Will you be having follow-up appointments there? Or will you be seen locally if you are at a distance? In either situation, I encourage you to begin making a list of all of your questions and concerns, along with his/her explanation of all of those test results. When is next appointment?

Jump to this post

Replies to "Hi, @jmadiedo, and wellcome to Connect. I am a liver/kidney transplant recipient and I completely understand..."
jmadiedo | @jmadiedo | May 14 6:44pm

Hi @rosemarya, yes I’m a patient at Mayo, AZ and will have my follow up appointments there. I live in Vegas so it’s not too far away.

My wife and I have been crying a bit. And it does seem to help but, I’m still it that bad place. To boot some cyst appeared in my kidneys through this process, I meet with urologist tomorrow to review.

my doc said I have real good prognosis with the things I’ve done so far to avoid further damage. Loosing weight, cutting out alcohol altogether and My labs etc coming back in range but, I’m still Stage 4 cirrhosis or “early cirrhosis” and I’m scared 🙁

are there folks here that have turned it around? Regressed it?

I’m driving myself worse by every thing I feel being a potential symptom.

You are so brave! Being a mentor and also a liver/kidney transplant recipient, I can’t seem to find that bravery right now. How long has it been for you?

I don’t have a firm next appt yet, I think all the tests are still ruling out any other potential underlying issues.

VIEW AND REPLY