← Return to Cretastimogene Grenadenorepvec: Anyone in the PIVOT-006 Study?

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@djr5

Hello,

I was diagnosed low grade NIMBC in December 2023, had TURBT, Mitomycin and a course of BCG.
The dctor found high grade NIMBC cardinoma in situ in January 2025, and I had an intravesical treatment of Adstiladrin in March. I have a cystopscopy scheduled for June 4th and I will know if I've achieved a complete response. I'm 70 years old. I had not heard of Cretostimogene prior to Fred's posting. I am thinking ahead, in the event that the Adstiladrin doesn't work. I'm trying to learn more about neobladders, which facility and physicians are best at the procedure, and - now - whether it would be a good choice to try Cretostimogene as a preliminary option, before surgery. I am in Omaha, Nebraska. Did you have to make application to participate in the Cretostimogene program? Was it something your doctor suggested? I'd appreciate any information you may have to share.

Dave

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Replies to "Hello, I was diagnosed low grade NIMBC in December 2023, had TURBT, Mitomycin and a course..."

headed for treatment with Adstiladrin within 2 weeks, 2 TURBT's tested lesions and came back positive. The cost for this new drug is out of this world but trials have really been promising