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Pseudomanosis: what is your protocol/medications

MAC & Bronchiectasis | Last Active: 3 days ago | Replies (23)
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@pjas972j

Hi,
I've been fighting pseudomonas for over 10 years because it became the mucoid form. There are many things you can do! You need to find a new pulmonologist, and soon! Levaquin and Cipro, while not optimal to take, can get rid of it. There are many IV medications that can fight it. I could only tolerate inhaled Tobramycin for about 18 months, but am now on inhaled Colistin - two weeks on, then two weeks off. I'm better than I have been in over a decade. Exercise also helps.
You are not alone and it is not hopeless! Talk to your PCP about finding a better pulmonologist and see if he/she can pull some strings to get you in ASAP!
I hope you feel better soon!

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Replies to "Hi, I've been fighting pseudomonas for over 10 years because it became the mucoid form. There..."
irenea8 | @irenea8 | May 15 6:54am

I also have mucoid form of Pseudo. I was not able to tolerate the Toby. But when I asked my pulmo about Colistin he said the side effects would be even worse than the Toby. Are you not finding that to be true?

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tevadog | @tevadog | 6 days ago

Cipro is a miracle med for my bloody phlegm and other related mac and Psuedomonisis. I'm sorry you suffer from all your issues.

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