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Are the lungs or heart causing shortness of breath and no energy?
MAC & Bronchiectasis | Last Active: 1 day ago | Replies (29)Comment receiving replies
I recall after previous bronchoscopies that my tests showed much improvement so I understand the usefulness of them. Being on the cusp of osteoporosis and therefore taking prolia, I also agree that things like prednisone have their place but at the expense of bone density/strength so one needs to be aware. I have found that the downside to being on prolia at my age (80) seems to make my immune system less able to fend off germs for inevitably in spite of eg masking precautions I come down with nasty flares that further irritate my lungs. The sleep study sounds like a good idea and it would be interesting to learn from you if oxygen supplementation while you sleep makes a difference since I am wondering the same and will discuss all of the above with my pulmonologist during my upcoming appointment. I did benefit considerably from 18 sessions of active pulmonary rehab and continue to utilize what I learned at home. Good luck!
Replies to "I recall after previous bronchoscopies that my tests showed much improvement so I understand the usefulness..."
My in a sleep lab sleep test is scheduled June 3. A preliminary home sleep study showed my oxygen satuation went below 88% 11% of the time, causing concern. I am using a cPap machine but have no events at all. Even though I log between 6-8 hours a night, I still feel tired and sleepy during the day. It'll be interesting to see what a more elaborate sleep study will turn up!
Thanks for the info on bone/density stuff. I also have issues with it and am currently not taking anything for it. Tried all the other drugs but no results. Actually what has helped me is tap dancing! Yes, I definitely increased the bone density in my spine tap dancing. I'm 79 by the way.
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Glad you mentioned the Prolia and what you believe you experienced with having taken it.
It has been recommended that I start the medication, Evenity, for my bad bone density test results -4 results. I am 82 + 7 months. Fell three times in the last 10 years and no broken bones. I have been 'lucky' so far.
Due to side effects I previously experienced with Actonel, Fosamax, and Forteo I have not wanted to take the meds in the past. The bone density tests now compared to when I tried the aforementioned meds is much worse. I haven't been on anything so far for the osteoporosis.
I wondered how the bone density meds might, or might not, affect the BE/MAI infection.
Giving much thought to what to do and have questions for pulmonologist and endocrinologist.
Barbara