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Any one with Neuroendocrine tumors getting the shot once a month?
Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (111)Comment receiving replies
Hello @mballinger51 and welcome to the NETs support group on Mayo Connect. I am so glad that you found this forum and have shared your experience. NETs is a rare cancer disorder and it a good thing to find others who are walking the same path. I am happy to hear that the monthly injections have lessened so many of your symptoms.
As you are new to the group, I look forward to getting to know you. Would you share a little about your diagnosis? For example, how long ago were your diagnosed, were the symptoms that you mentioned the ones that led to the diagnosis?
Replies to "Hello @mballinger51 and welcome to the NETs support group on Mayo Connect. I am so glad..."
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Hi - PNet diagnosis in September of ‘20 …. (4) total tumors …. Three in pancreas (head 3cm, body 3mm, tail 3mm, lymph node 4cm) …. Whipple in January ‘21, removed head of pancreas, all lymph nodes at pancreas and did “normal” Whipple stuff …. Scans and blood work every 6 months, metastasized to liver and another lymph nodes 3 years later, (4) total tumors again …. (3) on liver all @ 3cm now, lymph node tumor is @ 4.5 cm …. Started me on the Lanreotide injections once a month @ 6 months ago but last set of scans in April showed it to be not effective in slowing down the growth of the tumors have another set of scans in August …. If injections are still not working as intended then will probably get more aggressive ie. (PRRT, ablation or resection) All my care is being taken care of at The MD Anderson Cancer Center in Houston …. Perry