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DiscussionSmall Nerve Fiber Neuropathy (Idiopathic) EYE ISSUES
Brain & Nervous System | Last Active: May 17 3:50pm | Replies (14)Comment receiving replies
Replies to "@rnlorena I chose my spine surgeon after doing a lot of research and reading any medical..."
@jenniferhunter Nothing. My appt. to the PA brought nothing. Nothing but aggravation. I tried getting an appt. at Mayo Jacksonville and the girl said it could be a YEAR in order to get an appt. I would love to go there. I am gonna check out Houston. There are When I went to see the PA I had my BP taken with an automatic machine. Those are flat out stupid they are not good. I take my with a manual cuff. The machine read 156/96. So when I got in a room I noticed my head pressure was increasing and I took my BP. It was 190/80. Right then the PA walked in and I told her I was taking a Clonidine. The PA thinks that my problem is caused by my blood pressure. Well as a nurse here is what I have to say. Out of 45 days of taking my blood pressures there were only 10 where my blood pressure was elevated. And some were not super high. So in that case I already know that my Dr. is not going to increase my blood pressure medication because if she did my BP would drop like a rock. There are days when I get up in the morning and take it and it is like 116/70 and I wait to retake my BP to see if it goes up enough to take my meds. I don't want to have my BP bottom out. Not good. I wanted a note in my record showing that I called and talked to one of the cardiology nurses and she told me what I already knew. The PA also suggested that I go back to the neurologist and see if he wants to do a spinal tap. I already saw him and he could have suggested it then. And no I don't want a spinal tap. The PA did say she would ask the Neurosurgeon to look at my discs. But I don't think anything will come of that. Communication Sucks. Sorry for that word. I left a note to my Eye Dr. describing exactly what change was going on with my eye. So I got a phone call on my cell phone with a message. It was totally wrong. I think it was for someone else. When a message is left on your phone it can be scrambled. The person that called me mentioned lab work and sinuses. That was nothing that I mentioned. So when I called about how the thing around my eye had changed his assistant said, "You need to keep using the eye drops for your Blepharospasm." First of all I have no Blepharospasm. And no one told me I did. And no one told me to use eye drops. I looked up Blepharospasm. It is a condition characterized by involuntary and forceful eyelid closure. It can occur as part of other neurological disorders. MY EYES are WIDE OPEN. I was getting a subtle feeling near my eye whichever one it decided to go to. And when that happened my BP was going up. Now the feelings are staying around my eyes. So I was worried about it because they are staying there. I thought it would be a good idea to get them checked. But now I have been labeled as having a Blepharospasm in my eye. I know for a fact a DOCTOR does not have to do a physical on you. Some still do. But I now wonder what other scrutiny they are under. Another neurosurgeon I had gone to suggested that he could inject three different discs. I asked him what he would use. I know they use a steroid but he also said he uses a numbing medication. I told him no because that is nothing but a stop gap. He raised his voice and said, "Medicare requires me to do that." Well if that were really true when I had my lumbar laminectomy why didn't my other Dr. say that? Besides a steroid can raise your Blood pressure. I happen to know all about that. I had to get a shot because of my back and my BP did go up. I would wake up and it was 140/90. I called a pharmacist and she gave me the facts about steroids and BP. I told her what kind and how much and she told me it could last for 5 weeks. Given the fact that my BP is going up because of my eye issues I don't need to help it any. Sorry if this seems rambling. As a retired nurse I am appalled at what the medical profession has become. Don't get me wrong. I am not surprised. I know there are still some great Drs. out there. I know that there are some doctors who will still assess their patients. When I spent two nights in the hospital the nurse who did my admission didn't touch me for assessment. She sat at a computer and asked me questions. @rnlorena