← Return to Where have you experienced pain due to PMR?H

Discussion
Comment receiving replies
Profile picture for Howdy! @kereno

I woke up at 2:00 suddenly one morning with a soreness in my neck and shoulder. I quickly realized it was in the hips and legs, feet and wrists, arms, elbows and hands—that is, all over. With the pain came weakness. I could barely get out of bed and remembered my husband’s walker was nearby. I was dependent upon it until I got on prednisone 5 weeks later. The only thing that helped was movement so I paced my little house for 1/2 hours at a stretch. It was difficult and painful to lie down so I rested on a chair or sofa—but how to get up? Pulling myself by draping my upper body over the walker and pivoting my weight until I reached an upright stance. My hands were too weak to open a tube of toothpaste. I couldn’t raise my arms. I dressed by dragging a shirt to the bed and leaning down, then wiggling myself into it. I don’t know how I got through that period. The more I moved the better I felt. Later in the daytimes I could move well enough to email my doctor and naturopath. My chiropractor was no help—hurt me worse. I could drive myself to the pool and the lab for bloodwork. My SED rate was borderline so I had to return a few days later when they could prove my inflammation and could prescribe the steroid. My naturopath took me off turmeric-curcumin and boswelia and put me on a Mediterranean diet: no sugar or refined flour, whole grains, fresh fruits and vegetables. I knew that motion in the water was therapeutic, so I pursued it 2-3 /week. Once on prednisone I was able to function again, but I had difficulties getting in. While we each have our own journeys in this we have commonalities as well. What was your experience?

Jump to this post


Replies to "I woke up at 2:00 suddenly one morning with a soreness in my neck and shoulder...."

@kereno Are you in remission now?