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@mp333

Hi, Been in here before. Diagnosed 8 yr ago. Seen all types of Doctors. Tried every med and treatments. The only thing that works is prednisone. In 4-6 hours I am normal. But have to know how to use it. For me my gastro gave me a 2 week taper starting with 25 mg. I had to go to 37 sometime. But symtoms always returned after 2 or 3 weeks. Now just use bursts of 12 mg for 2 days or alternate days and fine for a couple of weeks or months. Longer than 5 days on prednisone seems to give depression for me.

A hot pack on the abdomen for 20 mins can get me up and about also. Its nothing to do with any type of food. Its when food starts moving along inflamed sensitive tract. About 15 mins or 30 mins after eating. Sometimes after the first bite. Maybe because intestines start actions straight away. Walking is great also. Its manageable. I have my life back. Hope this helps. Murray

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Btw my symptoms can range from delirium, extreme nausea, fatigue, weakness, exercise intolerance. Abdominal pain and tenderness, Belly extension with pulse throbbing in belly. Burping, gas, heartburn. And symptoms can appear "just like that". So weird. Also long periods squeezing abdomen can bring on symptoms. eg sitting playing guitar. or squatting. Immunologist suggested it was an abnormal reaction to pain by the mesentery. Just lying down can ease symptoms.