← Return to CAR-T after MM relapse 13 months post-ASCT
DiscussionCAR-T after MM relapse 13 months post-ASCT
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jan 10 7:59pm | Replies (25)Comment receiving replies
Replies to "Thanks Lori! - It's actually my mom. Thank you for bringing @4health4bonnie into this conversation -..."
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I am finally home! I am 78 and in fairly good health except for MM. i feel very lucky that I had a Crs reaction after my car t, but so far nothing else major. I had fatigue and lightheadedness in the first thirty days. I had some. digestive upset. I am immune compromised, and I had to have a few growth factor shots in the last 60 days. . Now my platelets are normal. My neutrophils are much better. I guess I am still immune compromised because I have no B cells (they can take a year to come back), and with MM you usually are. I have to be careful and wear a mask at the store and stay away from sick people. My myeloma was 50 per cent better after thirty days which is common . My doctors are pleased. I had high disease burden. They expect me to get better and better in the next few months. I still expect to be in total remission! I feel more normal now, but I am slightly anemic, so by the end of the day I get tired. My experience with Car T has been very good. I am very grateful.