@lexic10
What country are you in and what is your age? Do you remember what triggered your symptoms? Were you under a significant amount of stress at the time?

Your symptoms are all concerning. Have you been to a gastroenterologist and had any falls endoscopy and colonoscopy? Have you had abdominal and transvaginal ultrasounds? Have you had extensive bloodwork and are you dehydrated? Have you reviewed all of your reports in detail to see what shows up as abnormal?

Do you have anyone that can help you advocate for proper care?

Have you ever been to a hematologist, endocrinologist or immunologist?

What are you able to eat/drink and keep down? Do you drink, smoke or vape? Do you use any recreational drugs? Have you had any testing for viruses or toxicities?

Do you get migraines and have you ever had Covid or the shots?

Hi @lexic10, I add my welcome. While no one on the forum can provide a diagnosis, members can listen and help with questions to ask your doctor. @dlydailyhope has asked you a lot of questions to help you get to the bottom of your gut issues. These are good questions to ask yourself and your doctor.

I also agree that your symptoms sound distressing. You mention that you've been to many doctors. Did you see a GI specialist (gastroenterologist)?

This is just a thought, but I had a similar issue when I was just a child. He didn’t matter what I ate; I would get nauseated and vomit for a couple of weeks about every three months. Finally, a doctor put me on a stomach tranquilizer called Belap. It worked perfectly and solved my problem. Then they changed it to a synthetic form of belladonna (the first one contained actual belladonna I believe), and it worked OK, but not quite as well. I took that for years, and then I didn’t need it anymore. I began to drink Metamucil every day until I became allergic to it about 30 years later, and it solved my problem pretty much unless I got really stressed. Now I believe the new one is called Bentyl. I don’t trust new medication as much as the old ones, but now they want $500 a month for Belap, so I don’t take it anymore, but I wish I could. If you carry all your stress in your stomach as I do, it might be helpful. I’m not a doctor and I don’t know if you’ve already tried that or not, but it’s just an idea. My doctor recently recommended aloe vera gel, and I just tried some on an empty stomach and I don’t feel so great, but maybe I need to give it another chance. I hope you find an answer to your stomach issue. You have my deepest sympathy. P.S. There’s a really good stomach meditation on YouTube by generation column. It’s the one that’s 9:58 seconds long. I find it very helpful. Good luck!

Hello @lexic10
I read your initial post and have been sitting on it since. I just have not known how to reply. I need to start, so here goes…

Welcome! I hate to hear how defeated you feel. For what it is worth you sound very clear and confident in what you do know. Have you ever thought there is just way.too.much.noise around you? I felt like I was being totally logical in plain sight and no one noticed how much I was struggling. There was just so much noise around me. I am so, so sorry you are going through this.

You found a good place here. It is safe and each and every one here wants to help. I am in no way a medical professional so I can’t offer medical advice. Heck, what I am the best at is failing to figure my own stuff out myself. Maybe you can learn from some of my mistakes. (That’d make it all worthwhile for me, ha!) Keep holding on.

You sound like you are in a downward spiral and trying to get out of survival mode. Is that accurate?

Curious……how did you find Mayo Clinic Connect, how did you find your way here? You can do this!

I have pancreatic insufficiency. The doctors are not good at diagnosing it. One of the symptoms is poop the consistency of peanut butter. More severe symptoms are abdominal pain and diarrhea. I take pancreatic enzymes which contain lipase, protease and amylase. If I am doing dairy I must take lactase. The best way to be sure is take these enzymes and see if you get better. Amazon sells them for around $20. I take 2 capsules at every meal. The prescription meds like Creon are very expensive.

Hey Lexi and welcome! I’m new here too. Has Crohn’s and Ulcerative colitis been ruled out? A lot of your symptoms sound like it could be Crohn’s or UC. Do you have diarrhea? And where is your pain located? Lower right/left side? Near your hip bone(s)? Also, have you been able to eat more? Less vomiting hopefully? I have Crohn’s disease btw, I got diagnosed at 15 and I’m 39 now so I have a lot of experience with living and dealing with Crohn’s disease. Please ask me any questions and I’ll answer as best as I can. I’m so sorry that the doctors aren’t helping you feel better. Did they at least give you pain meds? And I don’t mean Tylenol/ibuprofen. NSAID’s can be really harmful to your stomach and can cause bleeding. So limit those if you’ve been taking them. Best of luck to you!

I’m so sorry you are struggling to get a diagnosis & proper treatment. It can be physically and mentally exhausting.
I have a couple of ideas/questions for you to explore with your doctor based on experience I’ve had and my daughter has had:
Have you been screened for an eating disorder? This would not explain all your symptoms but could be a factor.
Have you been checked for gastroparesis? It’s slow emptying of the stomach & causes nausea and makes eating difficult.
You might be Celiac or at least gluten sensitive. You could try going gluten free for a few months to see if that helps. You might be sensitive to other things in your diet too though. Enterolab tested me & once I knew all the foods to avoid my Collagenous Colitis improved quite a bit (it’s only been a month or two - but went years without any real help). Some insurance won’t cover their tests but me and a whole community of folks who have Microscopic Colitis have been helped by them.
Wishing you the best

I'm so sorry you're experiencing so many health issues. It's so frustrating to be told they can't figure it out. I'm not a doctor, but drinking through a straw seems like the opposite thing to do for your issues. I know, another person saying so this or do that. I was told by my gastro not to drink through a straw, and ever since switching to using a Hydro Flask instead of a large "sippy cup" with a straw, I've been better in that regard. I have an esophageal disease, so my experiences may not help you. I had to cut out all fresh veggies, salads & hard fruits...apples definitely a no, as is pineapple. I switched to local raw honey in my tea rather than other sweeteners, and I was told to cut out all caffeine, which has helped. When I used to make coffee, I added cinnamon & maple syrup to the pot, and used half&half instead of flavored creamers that I discovered had carrageenan, a bad additive. I had to eliminate most dairy also. I would suggest maybe do some research on elimination diets and see if you can pinpoint things that exacerbate your issues. Trust me, totally changing your lifelong dietary choices is extremely difficult! I also had to stop having any spicey foods, which I really miss. Perhaps take these suggestions along with the others you've received and see what you can do in your own, as it seems like you're not getting terrific medical advice from the professionals. You may want to reconsider your medical team...are they experienced in YOUR specific issues? Do you like them? Do you trust them? Do family or friends have legitimate recommendations of physicians with whom they have good experiences? Make sure your gastroenterologist is knowledgeable and well-trained in your specific issues. Do your research on them. I don't know if there's anything more important than finding a qualified physician with expertise & experience with your issues, and that you like and trust. Sounds like you're being dismissed by a variety of doctors who are interested in figuring out what's wrong with you. To be told it's all in your head isn't practicing good medicine. Yes, we all get frustrated and at times have anxiety, but who wouldn't when you're sick, tired of ensuring procedure & trying medications that don't work. I'd suggest trying a PPI like Pantoprazole. I'm on it and also Hyoscyamine. Recently put on an oral inhaler corticosteroid. I'm very blessed to have a gastro that I like and trust, and that is very experienced in my disease (Lymphocytic Esophagitis). My issue is esophageal, not intestinal. I know I can trust my gastro, and appreciate that he uses conservative treatments first and does all of the appropriate testing to rule things in or out. I will pray that you find a gastro you also can trust and like. You can always make an initial appt. for a consultation to see what you think about him/her. Keep really good records of dates of tests, rest results, things they've tried & failed, all symptoms, all meds, etc. I use Word and Excel spreadsheets and list everything that's done by any & all doctors, lists of meds tried and/or are using, etc. I use the Word doc to take to appts... not only does it replace filling out 10 pages of questionnaires, it shows the doctor that you know what's going on. To a person, they've all said "I wish all of my patients were this thorough". Besides, I would not be able to remember what happened 10 or 10 years ago! Or even last year, lol. I break my multiple diagnoses into categories, like gastro, orthopedic, pulmonary, etc. I also list all vaccines. I will pray for you, if that's okay, to find the right doctors, get the right diagnoses, and get the right treatment plan to help you heal & feel better. I understand what it's like to live with chronic health issues...they are at times debilitating, and always life-changing. I'm truly sorry you seem that you're at your wit's end. Take a deep breath and start on a new journey towards finding the right people & treatments. Best of luck to you.